Advertised from 5 August 2025

Role

Trustee Recruitment - Lead with Purpose: Become a Trustee and Help Achieve a Life Unlimited. 

Your experience. Your voice. Your impact.

At Cystic Fibrosis Trust, we believe in a world where everyone with cystic fibrosis (CF), can live a life unlimited — and we’re inviting passionate individuals to join us on this powerful journey.

This is more than a governance role — it’s an opportunity to help guide strategic decisions that impact lives, influence national initiatives, and accelerate progress for a community that deserves nothing less than a brighter future.

• Location: Remote / hybrid
• Commitment: Flexible, approx. one day per month
• Positions available: Multiple
• Remuneration: Voluntary (reasonable expenses reimbursed)

About us 

Cystic Fibrosis Trust is the UK’s leading charity dedicated to uniting for a life unlimited for everyone with CF – one of the most common life-limiting genetic conditions. 

Our team of dedicated staff, volunteers, and Trustees works alongside people affected by CF to fund life-changing research, promote world-class clinical care, and provide essential advice and support. We champion a community that is united by strength, compassion, and hope.

Our work relies on the generous donations of our supporters.

About the role 

As a Trustee, you’ll play a pivotal role in shaping our vision, values, and strategic direction, developing our aims, objectives, and goals. Your leadership will help us make decisions that matter, and your voice will help steer us toward a stronger, inclusive future. Trustees typically serve a three-year term, with the option to continue for a second.

This is a voluntary role (unpaid), but reasonable expenses can be claimed for travel to attend meetings in person.

Time Commitment: up to one day a month on average, comprised of preparation for and attending meetings, away days and Trust related activities

Who are we looking for?

We welcome applications from individuals of all backgrounds and experiences. 

Due to our normal rotational retirements and trustee terms of office we have several vacancies. We are keen to increase the representation of people with lived experience of CF and are particularly interested in applications from all people who can offer professional skills and experience in: 

• finance and accountancy
• legal practice/law
• fundraising and income generation 
• marketing and communications 
• data and digital strategies 
• basic science research 
• non-clinical CF professions (e.g. psychology or social worker)

As part of our long-term succession planning, we would also welcome interest from candidates who may be open to taking on additional Board leadership responsibilities in the future, e.g. Chair, treasurer, or committee roles.

The cystic fibrosis community is diverse, encompassing people of all ages and backgrounds. We are committed to ensuring that this diversity is reflected on our Board. We are especially interested in hearing from those with lived experience of CF, disabled individuals, and candidates from Black, Asian, and minority ethnic communities, as well as LGBTQI individuals. We value fresh perspectives and encourage applications from first-time trustees.  

Why Join Us?

• Make a meaningful impact on the lives of people affected by cystic fibrosis.
• Engage with dynamic peers who are driven, forward-thinking, passionate and purpose-led.
• Help drive an inspirational mission that blends science, support, and community.
• Play a critical role in shaping our strategic direction, ensuring robust governance, and championing equity, diversity and inclusion.
• Gain valuable experience in governance and strategic planning.
• Use your expertise to fuel lasting change.

If you are passionate about making a difference for people with cystic fibrosis, this is your moment. Please get in touch.

Application notes

Ready to Make a Difference?

Download our Trust Recruitment Pack below to learn more about the role, what we’re looking for, and how to apply.

Important Date

• Closing date for applications: 23.59 on Wednesday, 20 August 2025
• First interview: Week commencing 8 September 2025
• Second interview: Week commencing 15 September 2025

For queries, please reach out to recruitment@cysticfibrosis.org.uk . We’ll be happy to support you.

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