Advertised from 17 July 2026

Role

We are looking for an experienced Financial Wellbeing Officer to ensure families impacted by Huntington’s Disease have support and advice to access their rights and entitlements.

Are you looking for a role in which you will help to improve the lives of families across Scotland? One that encourages you to share your expertise, build new skills and feel valued by colleagues, clients and the organisation you work for?

This is an exciting time to join Scottish Huntington’s Association as we continue to implement Standing Tall: A Strategy For Growth 2023 - 28 to transform the care and support of Huntington’s families.

It comes as the charity continues to build support for its essential work in partnership with statutory and other major funding organisations, a growing army of volunteer fundraisers, and with MPs/MSPs from across all political parties.

We are looking for someone who is enthusiastic, motivated and takes great pride in the work they do. With experience working in advice services to deliver welfare rights, money advice and future planning services to families impacted by Huntington’s Disease in Scotland. You will work with the Financial Wellbeing Service Lead in addition to our HD Specialists and Specialist Youth Advisors across Scotland.

About Scottish Huntington’s Association

People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, the impact on families and a lack of awareness amongst health and social care providers and the wider public.

Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert and personalised support for those impacted by Huntington’s disease.

Our personalised support reduces unnecessary hospital admissions, supports carers and other family members; lowers household poverty; and alleviates wellbeing risks to children and young people living in Huntington’s families.

We are commissioned by NHS Boards and Health and Social Care Partnerships throughout the country to share our expertise with front line staff and build support for improved services and higher standards of care for every family impacted by this devastating disease.

About Huntington’s disease

Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the disease can eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist support from those who understand the condition.

The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entire families over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50% risk of inheriting the condition from them.

Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 are estimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.

What we offer

• Generous annual leave entitlement
• Increasing annual leave days to recognise long service (after 4 years)
• Contribution pension scheme
• A flexible hybrid approach to work
• Regular supervision

Application notes

Please complete our Application Form to tell us about who you are and your experience/impact in previous or current roles.

You will find the Application Form, more information and the downloadable Equal Opportunities Monitoring Form in the vacancies section of our website at

https://hdscotland.org/volunteering/vacancies/

Email your application, including the Equal Opportunities Monitoring Form, with a subject line of Financial Wellbeing Service Officer to recruitment@hdscotland.org.

Scottish Huntington’s Association is committed to promoting equal opportunities in employment.

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