Advertised from 18 May 2026

Role

Are you looking for a role in which you will improve the lives of families in your community? A role that enables you to work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisation you work for?

It’s an exciting time to be part of Scottish Huntington’s Association with the implementation of Standing Tall: A Strategy For Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raise awareness and deepen our involvement and support for world-leading research and clinical trials.

We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s Disease Specialists to provide care management, specialist assessment and emotional support to individuals and families across Scotland.

Working in partnership with local Health and Social Care teams, you will also provide advice, training and education to professionals and voluntary agencies involved in all aspects of Huntington’s disease care.

The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life of the individuals and families they support. This role is open to medical and health and social care staff from backgrounds such as nursing, allied health, social work and medicine**. Professional body membership is essential.** Previous experience of Huntington’s disease is advantageous but not essential as full training will be provided.

You should be able to work autonomously in this challenging and rewarding position. Good listening, communication and interpersonal skills are vital, as are excellent time keeping and caseload management abilities. Community-based practice knowledge, a driving licence and use of a car complete our list of essential criteria. The successful candidate will be subject to an enhanced disclosure check.

Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support of individuals and families whose lives are impacted by Huntington’s disease, an incurable neurological condition with severe and complex physical, mental health and cognitive symptoms.

You will find a values-driven organisation, founded by families for families, and recognised at national and international levels for expertise in supporting the Huntington’s disease community.

General

All applicants must be able to demonstrate the right to work in the UK.

The post will be subject to a four-month probationary period.

Out-of-pocket expenses including travel and mileage allowances will be paid on receipt of appropriate claim forms and invoices/receipts.

Application notes

Please complete the Application Form to tell us about who you are and your experience/impact in previous or current roles.

You will find the Application Form, which includes a link to the Person Specification document, more information about the role, and the downloadable Equal Opportunities Monitoring Form in the vacancies section of our website at https://hdscotland.org/volunteering/vacancies/

Email your application, including the Equal Opportunities Monitoring Form, with a subject line of Senior Huntington’s Disease Specialist (GGC) to recruitment@hdscotland.org. 

Closing date for applications: Friday 5 June 2026 at noon

Interview date: From w/c Monday 22 June 2026

Find out more about Huntington’s disease and the work of Scottish Huntington’s Association at hdscotland.org.

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