Advertised from 9 September 2025

Role

If you are passionate about making a difference for PWS families in Scotland we want to hear from you!

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.

We are looking for a part time PWS Specialist Advisor for Scotland to support the PWS community in Scotland. PWS is a rare and isolating condition and our ambition it to reach families in Scotland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Scotland as well as a belief in the potential and value of people with Prader-Willi syndrome.

You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers. 

The position is part time (3 days a week) and is home based and ideal for someone living in Scotland

Application notes

If you want to help us drive forward with our ambitions in Scotland – Please send your CV and covering letter to jlodge@pwsa.co.uk by 9am Monday 22nd September

Interviews will be by Zoom on Tuesday 30th September 

If you would like to discuss this opportunity please email Jackie Lodge jlodge@pwsa.co.uk

Downloads