Advertised from 20 June 2025

Role

Are you a senior leader with an ability to motivate staff and guide the work of a leading Scottish national charity to deliver for one of our most vulnerable communities? Can you promote a culture of excellence through collaboration with colleagues and external partners that drives continuous change and improvement to the benefit of our service users throughout Scotland? Do you have a background in health and social care and/or the third sector? If so, Scottish Huntington’s Association wants to hear from you.

Reporting directly to our Chief Executive, this role offers the opportunity to drive the frontline work of Scottish Huntington’s Association and make a real difference to an often overlooked, misunderstood and vulnerable community in Scotland. In addition to overseeing our three Specialist service teams you will be expected to demonstrate strong leadership and decision-making skills as a key member of the charity’s Leadership Teams, while also liaising effectively with our Board of Trustees. This is not a front line, client facing role – it is a strategic leadership role.

You will therefore bring a strategic approach, a proven record of success in operational delivery, and experience of leading high-performing teams. Putting our community at the heart of everything you do, and inspiring a positive, productive and collaborative organisational culture in line with our vision, mission and values, you will be motivated to ensure your teams deliver the best outcomes for families impacted by Huntington’s disease while also meeting the requirements of funding partners, donors, supporters and staff.

About Scottish Huntington’s Association

As the only organisation in Scotland exclusively dedicated to the country’s Huntington’s community, Scottish Huntington’s Association is recognised at national and international levels for its impact and approach. Our specialist staff deliver care and support that improves the lives of young people growing up in Huntington’s families, people with the disease or facing the onset of symptoms, those who are at risk of developing the condition, and carers. Furthermore, we are trusted by NHS and care providers to deliver Huntington’s disease training to practitioners including hundreds of nurses, occupational therapists, physiotherapists, and care home staff. 

Our most recent impact survey found that 83% of clients are better able to manage symptoms; 85% say their mental health has improved; and 96% have more understanding about the disease as a result of specialist support provided by Scottish Huntington’s Association.

You will also be joining an organisation determined to maintain and build upon its high level of employee satisfaction – our 2025 staff survey found that 97% of staff enjoy working at Scottish Huntington’s Association; 100% trust and respect their line manager; 100% believe our teams work well together; and 97% hope to continue working for Scottish Huntington’s Association.

About you

You will possess outstanding leadership and interpersonal skills in addition to a deep passion for motivating teams to fight for and deliver the best possible outcomes for families living with Huntington’s disease in Scotland.

You will also demonstrate excellent written and verbal communication skills, be analytical, data-driven, results-focused, and detail-oriented with ability to effectively prioritise your workload – all while mentoring your teams to do the same.

You will be confident working with colleagues at all levels across the organisation, contribute positively to our inclusive and supportive workplace culture, promote collaborative working, and able to advocate and influence on behalf of our community to external partners and agencies.

We offer:

• Workplace pension scheme

• Childcare Voucher Scheme

• 25 annual leave days and typically 12 public holidays per year

Note: Your annual leave and public holidays are combined, with four mandatory public holidays that must be taken from your entitlement on 25 and 26 December, and 1 and 2 January each year.

• Staff loyalty scheme: Employees with four completed years of service are entitled to an extra day for each additional year served, up to a maximum of five days.

• Flexible working options to support our staff and promote inclusive working practices. 

This position follows a home-working model, with the option for a hybrid arrangement from one of our offices throughout Scotland. A full driving licence and daily access to a car are essential requirements for this role. 

Working hours

The is a full-time role (36 hours). 

You will be joining a friendly and passionate organisation at an exciting time for Scottish Huntington’s Association, now in the third year of Standing Tall: A Strategy For Growth 2023 - 2028. If you are interested in this role and can demonstrate you meet most of the criteria, we would love to hear from you.

At Scottish Huntington’s Association, we celebrate diversity and the innovative ideas it brings. We actively encourage applications from all backgrounds.

You will find information about Huntington’s disease and our work at hdscotland.org.

Application notes

Please review the Job Description and Person Specification documents then complete the downloadable Application Form and Equal Opportunities Monitoring Form, which are also available in the ‘Work For Us’ section of our website.

Please email your completed application, including the Equal Opportunities Monitoring Form, with the name of the vacant post as your subject line, to recruitment@hdscotland.org as well as any informal enquiries about the role.

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